People affected
Rare is everywhere.
Rare diseases may be individually uncommon, but together they affect millions of people around the world. RAREis amplifies the voices and experiences of people living with rare diseases—patients, caregivers, advocates, and leaders whose stories deepen understanding and strengthen connection across the rare disease community.
1 in 10
30M+
US population
10,000+
known rare diseases
95%
have no approved treatment
