What is rare?

Going to incredible lengths to impact incredible lives.

About the community

#RAREisTM began as a social media campaign launched by Horizon Therapeutics to elevate the voices, faces and experiences of the rare disease community. It has since grown into a program that provides individuals and families access to resources that connect, inform and educate as they navigate their daily lives. The hashtag (#) is a way to follow the conversation and remains in the name and logo to represent the broader program and community.

RAREis Voices

See how Horizon’s #RAREis program is raising awareness for people living with rare diseases.

#RAREis

#RAREis brings together a chorus of individuals speaking out to the world about rare disease and what #RAREis means to them. Tell the rare disease story you are passionate about.

Share Your Story

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