There are more than 7,000 rare diseases affecting nearly 30 million Americans. Living with a rare disease can impact every aspect of one’s life. #RAREis Community brings together firsthand experiences spanning a wide variety of topics that are common in the lives of those affected by rare disease.
Stop by, pull up a chair, and join the conversation. Have something you want to talk about? Send us a message at firstname.lastname@example.org; we’re here to listen and learn.