There are more than 10,000 rare diseases affecting nearly 400 million people worldwide. Living with a rare disease can impact every aspect of one’s life no matter where you live. The #RAREis Community brings together firsthand experiences spanning a wide variety of topics that are common in the lives of those affected by rare disease.
Stop by, and join the conversation. Have something you want to talk about? Send us a message at firstname.lastname@example.org; we’re here to listen and learn.