Finding relevant and reliable mental health resources can be challenging and may leave you feeling frustrated, overwhelmed and even potentially more stressed than you were before. But the truth is, mental and emotional health is just as important as physical health when it comes to the overall well-being of people and caregivers affected by a rare disease.
Although mental health is becoming a greater part of the conversation among patients, caregivers and healthcare providers, it’s crucial to continue to elevate the importance, reduce the stigma and connect the community to a wide array of resources, support groups and organizations.
Below are five resources designed to help the community navigate their unique needs.