#RAREis brings together a chorus of individuals speaking out to the world about rare disease and what #RAREis means to them. It is a community that raises awareness of rare diseases by sharing stories, accomplishments, hopes, fears and dreams.
Your Voice
Share your #RAREis
Tell the rare disease story you are passionate about – click here, create a caption, and upload a photo or selfie.
Your photo may be featured on this website and on social media as part of Amgen’s #RAREis global campaign that highlights the faces and raises voices of people living with rare diseases around the world. To date, hundreds of rare disease stories have been shared across our social media channels, and many more people living with rare diseases and their families have proactively shared their own journeys with us. Here’s our story, we can hardly wait to hear yours!