At Horizon Therapeutics, we know our responsibility goes beyond our patient communities to the communities where we live and work. It is why we are committed to organizations that share our common purpose: to transform and better the lives of those who need it most.

As an active partner in the rare disease community, we provide support to many organizations that deliver a wide range of crucial programs and services. These rare disease organizations promote the needs and priorities of people living with rare diseases and their families and provide various types of support and assistance.

National Organization for Rare Disorders logo

The National Organization for Rare Disorders (NORD) is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service. They provide many resources for people living with rare diseases, their families and other advocates.

Global Genes is a leading rare disease patient advocacy organization whose mission is to connect, empower, and inspire the rare disease community. With international scope, Global Genes develops educational resources, programs, and events that unite patients, advocates, and industry experts.

  • Global Genes RARE Patient Advocacy Summit: The largest rare patient advocate event worldwide, Global Genes’ summit gathers hundreds of patients, caregivers, advocates, and rare disease stakeholders to become immersed in rare disease advocacy, gain valuable knowledge, and forge meaningful partnerships.
  • Scholarships to the RARE Patient Advocacy Summit: With the help of sponsorships, advocates from all over the globe are afforded travel and lodging scholarships to attend the summit. Email for scholarship information.

Miracle Flights logo

Miracle Flights provides financial assistance to low-income children for commercial air travel to obtain special medical care. Qualifying families can receive travel assistance for the child patient and up to two parents or legal guardians.

Good Days is an organization that works to improve the health and quality of life of patients with chronic disease, cancer, or other life-altering conditions. The organization may help provide families with financial and travel assistance.

Healthwell Foundation logo

The HealthWell Foundation is an independent non-profit dedicated to reducing financial barriers to care for underinsured Americans with chronic and life-altering medical conditions. By assisting with their cost-sharing obligations, HealthWell offers a financial lifeline to adults and children who desperately need critical medical treatments but can’t afford them.

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