Share Your #Rareis

Everybody has a story to tell. Share yours below!

Add your voice to the #RAREis community by telling your story or sharing what rare disease you are passionate about supporting. You may be featured on this website and on social media as part of Amgen’s #RAREis program.

Share your #RAREis Story
First Name*
Last Name*
Email*
Location*
I am an*
- Individual living with a rare disease
- Advocate
- Caregiver
My story is about*
- My healthcare journey
- Someone I care for who lives with a rare disease
- How I support the rare disease community
Step-by-Step Instructions

Record your story on your computer by clicking the red button below

Upload a photo of yourself that best represents who you are

Upload a video of you from your phone that shares your story

If you prefer words, submit your written story below

Quick Tip

We want to hear from you! Whether you prefer to share your story via video, pictures or in a blog, tell us below! While videos can be up to 10 minutes long, we recommend keeping your story to under 2 minutes, you are welcome to use up to the full 10 minutes if needed. You can also record as many takes as you need! We cant wait to hear from you!
Record your #RAREis Story
UPLOAD A PHOTO
Drop files here or

Accepted file types: jpg, jpeg, png, gif, pdf, doc, docx, ppt, pptx, Max. file size: 50 MB.
UPLOAD A VIDEO
Accepted file types: m4a, mov, mp4, mpg, wmv, Max. file size: 50 MB.
Submit a written story*
Privacy Notice and Consent
Privacy Notice and Consent

By checking this box, you authorize Amgen Inc. and its affiliates and subsidiaries (“Amgen”) to use and share your name, photo, video, likeness, and comments for programs without compensation, including the #RAREis website and on social media for the purposes of raising global awareness of our #RAREis program, which are available to the public, and release Amgen from any liability on account of such use.

Amgen will process your personal information in accordance with our Privacy Policy. Amgen may continue to share this information for 10 years from the date of your submission, or until you withdraw this authorization. You may request a copy of or withdraw this authorization by contacting us at privacy@amgen.com
Consent-3*
By checking this box, you agree to the foregoing and acknowledge that you are submitting this form voluntarily, and are at least 18 years of age.*
Consent-3*
By checking this box, you have read the Amgen’s Privacy Policy and agree to the Amgen Terms and Conditions.*
Consent-3*
By checking this box, you agree to disclose your personal information, including contact information, to Amgen and to be contacted by Amgen regarding your submission to discuss your story further.*

Share Your #RAREis

Everybody has a story to tell. Share yours below!

Share your #RAREis Story

Step-by-Step Instructions

Quick Tip

Record your #RAREis Story

Privacy Notice and Consent

Privacy Notice and Consent

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