Everybody has a story to tell. Share yours below!

Add your voice to the #RAREis community by telling your story or sharing what rare disease you are passionate about supporting. You may be featured on this website and on social media as part of Amgen’s #RAREis program.

  • Share your #RAREis Story

  • Step-by-Step Instructions

    Record your story on your computer by clicking the red button below
    Upload a photo of yourself that best represents who you are
    Upload a video of you from your phone that shares your story
    If you prefer words, submit your written story below

    Quick Tip

    We want to hear from you! Whether you prefer to share your story via video, pictures or in a blog, tell us below! While videos can be up to 10 minutes long, we recommend keeping your story to under 2 minutes, you are welcome to use up to the full 10 minutes if needed. You can also record as many takes as you need! We cant wait to hear from you!

  • Record your #RAREis Story

  • Drop files here or
    Accepted file types: jpg, jpeg, png, gif, pdf, doc, docx, ppt, pptx, Max. file size: 50 MB.
    • Accepted file types: m4a, mov, mp4, mpg, wmv, Max. file size: 50 MB.
    • Privacy Notice and Consent

    • Privacy Notice and Consent

      By checking this box, you authorize Amgen Inc. and its affiliates and subsidiaries (“Amgen”) to use and share your name, photo, video, likeness, and comments for programs without compensation, including the #RAREis website and on social media for the purposes of raising global awareness of our #RAREis program, which are available to the public, and release Amgen from any liability on account of such use.

      Amgen will process your personal information in accordance with our Privacy Policy. Amgen may continue to share this information for 10 years from the date of your submission, or until you withdraw this authorization. You may request a copy of or withdraw this authorization by contacting us at privacy@amgen.com

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