Be ready for anything

Life transitions may present unique obstacles or occur at different times for people living with rare disease. It’s important to understand what types of changes you might encounter and how to navigate them to get ready for what comes next.

Whether it’s moving from pediatric to adult medical care, starting school, taking on a career, or making plans to ensure financial security later in life, #RAREis Transitions is here to help you prepare with guidance and connections to the right resources.

The content in this section may not be applicable in all countries.

Thank you to the following advocacy organizations that provided strategic guidance on our transitions topics: Arizona Network for PKU and Allied DisordersChild Neurology FoundationConnecting Families UCD FoundationCystinosis Research NetworkFriedreich’s Ataxia Research AllianceGlobal Genes, Immune Deficiency Education Association, Immune Deficiency FoundationNational Alliance for CaregivingOsteoPETrosis Society

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