Eleven years ago, Felicia Morton’s son, Sebastian, was a happy and seemingly healthy newborn. But when he was six weeks old, Sebastian began to spike extremely high fevers for days on end, sometimes topping 105 degrees. Doctors tested for leukemia and recommended they try different baby formulas, but nothing seemed to help; it was like a labyrinthian maze that doctors couldn’t figure out.
The lack of answers continued for five months, during which Sebastian’s tiny body started to form abscesses that had to be drained in hospital emergency rooms. Felicia, who had been working in public relations (PR) in the healthcare industry, put her knowledge to work researching all possibilities and she eventually suspected Sebastian’s problems were related to an immunodeficiency.
After sharing her thoughts with Sebastian’s doctors, they ran tests and just like she predicted, Sebastian was diagnosed with a rare genetic immune deficiency called Chronic Granulomatous Disease (CGD). And life as the family knew it, seemed to fall apart in that moment.