Strength in Community: A RAREis Study
In 2023, RAREis hosted virtual summit to help articulate and clearly define some of the challenges that can feel distinct to a particular disease, but in truth impact much broader communities. The Strength in Community study made it clear—the future of disease advocacy is simply stronger together.
Education and Employment
Going to school and getting a job are often major milestones of growing up. Living with a rare disease can make it difficult for some to do these things. Whether you need information about educational support programs or want to know what to tell your employer, RAREis Transitions can help you navigate.
Genetic Testing
From knowing what types of genetic testing exist, to understanding the role of a genetic counselor and how to talk to your family about testing, this RAREis genetic testing resource is here to guide you to information and support to help you through your journey.