Our Commitment to the Rare Disease Community
We are committed to advancing and improving the experience of living with a rare disease by making a meaningful difference for the global rare disease community. As part of that commitment, we launched the #RAREis Global Advocate Grant in 2022 to provide critical financial assistance and build equity for the community by fostering growth for advocacy organizations around the world.
The 2023 #RAREis Global Advocate Grant was announced in February in honor of Rare Disease Day and to increase impact and support advocates who are catalysts for rare disease community needs, 50 groups were awarded a one-time $5,000 grant to establish new programs, develop educational resources and expand their current offerings to support their disease communities.