Commemorating the 2023 #RAREis Global Advocate Grant Recipients

50 global patient advocacy groups awarded a $5,000 grant to address unique challenges faced in rare disease communities.

July 26, 2023 by #RAREisTeam

2023 Recipient

Our Commitment to the Rare Disease Community

We are committed to advancing and improving the experience of living with a rare disease by making a meaningful difference for the global rare disease community. As part of that commitment, we launched the #RAREis Global Advocate Grant in 2022 to provide critical financial assistance and build equity for the community by fostering growth for advocacy organizations around the world.


The 2023 #RAREis Global Advocate Grant was 
announced in February in honor of Rare Disease Day and to increase impact and support advocates who are catalysts for rare disease community needs, 50 groups were awarded a one-time $5,000 grant to establish new programs, develop educational resources and expand their current offerings to support their disease communities.

Meet the 2023 Recipients

Avery’s Hope


Rare Gastrointestinal Diseases


Beck-Fahrner Syndrome Foundation

Beck-Fahrner Syndrome


CACNA1A Foundation, Inc.

CACNA1A Related Diseases


Chordoma Foundation*


Chordoma


EBF3 HADDS Foundation

EBF3 HADD Syndrome


Erdheim-Chester Disease Global Alliance

Erdheim-Chester Disease


Foundation for Sarcoidosis Research

Sarcoidosis


GACI Global

Generalized Arterial Calcification of Infancy


Glanzmann’s Research Foundation, Inc.

Glanzmann’s Thrombasthenia


Hypertrophic Olivary Degeneration Association

Hypertrophic Olivary Degeneration


Indo US Organization for Rare Diseases


Disease Agnostic


Jansen de-Vries Syndrome Foundation*

Jasen de-Vries Syndrome


Koolen de-Vries Syndrome Foundation*


Koolen de-Vries Syndrome


Lennox-Gastaut Syndrome Foundation*


Lennox-Gastaut Syndrome


MEPAN Foundation


MEPAN Syndrome


Osteogenesis Imperfecta Foundation


Osteogenesis Imperfecta


Pediatric Epilepsy Surgery Alliance


Rare Pediatric Epilepsy Diseases


Progressive Familial Intrahepatic Cholestasis Network


Progressive Familial Intrahepatic Cholestasis


Project FAVA


Fibro-Adipose Vascular Anomaly


Recurrent Respiratory Papillomatosis Foundation


Recurrent Respiratory Papillomatosis


SHINE Syndrome Foundation*


DLG4, PSD-95 and SHINE Syndrome


Soft Bones, Inc.


Hypophosphatasia


Spinal Leak CSF Foundation


Intracranial Hypotension, Spinal Cerebrospinal Fluid Leak


TANGO2 Research Foundation*


TANGO2 Related Deficiency Disorders


TBX4Life


TBX4 Syndrome


The E.WE Foundation*


Edwards Syndrome, commonly known as Trisomy 18

The Rory Belle Foundation


NARS1 Related Diseases


Alliance for Pulmonary Hypertension (AfPH)


Pulmonary Hypertension


European Huntington Association


Huntington’s Disease


International Patient Organisation for Primary Immunodeficiencies


Primary Immunodeficiencies


Aliança Distrofia Brasil


Muscular Dystrophy


Brazilian Association of Prader-Willi Syndrome


Prader-Willi Syndrome


Instituto Atlas Biosocial


Disease Agnostic


Bulgarian Society of the Patients with PH


Pulmonary Hypertension


International Gaucher Alliance


Gaucher Related Diseases


Rare Disease Ghana Initiative


Disease Agnostic


DEBRA Ireland


Epidermolysis Bullosa


Northern Ireland Rare Disease Partnership


Disease Agnostic


Usher Syndrome Ireland


Usher Syndrome


Associazione Italiana Sindrome di Beckwith-Wiedemann ODV


Beckwith-Wiedemann Syndrome


Associazione Sindrome di Noonan e RASopatie ODV


Noonan Syndrome and RASopathies Related Diseases


ConRett ETS

Rett Syndrome


SCN2A Italia Famiglie In Rete APS


Medical Conditions Related to the Gene SCN2A


Uniti per la P.I.P.O. ETS


Chronic Intestinal Pseudo-Obstruction


Nederlandse Leverpatienten Vereniging


Rare Liver Diseases


NF Patients United – Global Network of Neurofibromatosis Patient Organizations


Neurofibromatosis Related Diseases


Philippine Society for Orphan Disorders


Disease Agnostic


Healthcare Education Institute*


Disease Agnostic


NGO Rare Diseases of Ukraine


Disease Agnostic


PNH Ukraine


Paroxysmal Nocturnal Hemoglobinuria

*indicates repeat recipients