Molly understands that living with a rare disease comes with many concerns outside of medicine. She believes that there is a social impact that comes with living with a rare disease, and helping people navigate that is important. Though Molly may not live with a rare disease, she spends a lot of time listening, learning and striving to understand the challenges that exists for each person. Knowing that, even in small ways, her help may make the journey and the range of challenges a little easier is what fuels her passion to work relentlessly for families. For example, she has worked with several high school students on learning to take over their care when they went to college and she has been able to share tips from this with other teenagers and make their transition a little smoother.
Listening, learning and finding ways to help solve problems is what motivates Molly every day. Her hope is to keep connecting families to one another and resources for support. Molly believes that raising awareness remains important because the more people understand, the more they are willing to help.