I’ve faced many health challenges in my life: At the age of 16, I was diagnosed with two gastrointestinal conditions and Common Variable Immunodeficiency, an inherited disease that makes me susceptible to infections and requires a life-long intravenous immunoglobulin therapy that I receive several times each year. One of the biggest challenges for me through my diagnosis and disease management was finding a community I could turn to for support, resources and to connect with over shared experience.
After reaching out to several different organizations, I was connected with the Immune Deficiency Foundation (IDF), an organization that aims to improve quality of life for people living with primary immunodeficiencies like myself. They have played an important role in supporting me on my journey through my condition. I’ve attended several of their local and national conferences and events, which has had a very positive impact on me and my physical and emotional well being. I’ve met new people, made new friends and learned from experts with a lot of knowledge of primary immunodeficiencies.