Launching the first-ever TED Awareness Week was a challenging yet rewarding process. My hope is that the heartfelt stories of individuals, caregivers and healthcare providers impacted by TED create a stronger sense of community and empower those impacted by TED to advocate for themselves. Establishing a supportive community allows individuals to connect through shared experiences of living with TED.
My rare disease experience with my mom fuels my passion to make a difference for the rare disease community each day. To those impacted by rare disease, I hear you, I see you and I will continue to advocate for you every step of the way. Know that you are not alone and that your stories impact me personally and professionally; they inspire me to make informed patient-centric decisions that positively impact the rare disease community.
About Veronica Moore
As a patient advocacy manager at Horizon Therapeutics, Veronica is both diligent and committed to the profession. Her role at Horizon allows her to engage with patients, caregivers, and to develop and maintain mutually beneficial relationships with advocacy organizations to support the patient journey as it relates to Thyroid Eye Disease (TED). Veronica has over 12 years of experience working with patients, caregivers and advocates in the non-profit, healthcare and research settings.
She holds a Bachelor of Science in public health studies from East Carolina University and a Master of Arts in sociology with a concentration in medical sociology from North Carolina Central University. Veronica Moore was born and currently resides in North Carolina. Veronica strives to continue to be a significant contributor to the rare disease community to and committed to address health inequities in rare and underserved patient communities.
About Thyroid Eye Disease
Thyroid Eye Disease (TED) is serious, progressive and vision-threatening rare autoimmune disease. TED often occurs in people living with Graves’ disease, a separate disorder that requires different treatment. TED causes the connective tissue, muscle and fat cells found behind the eye to become inflamed and swollen, which can permanently change the eye over time, causing painful and debilitating symptoms, such as light sensitivity, eye grittiness, eye bulging and double vision. For more information, visit ThyroidEyes.com.
Tell us how you are working in rare. Email email@example.com to share your story.