One of Daniel’s most rewarding accomplishments during his tenure at TSC Alliance is the launch and ongoing production of TSC Now, a podcast featuring interviews with families, clinicians, researchers, TSC Alliance staff, and others on topics like TSC research, epilepsy surgery options, educational advocacy, and more. While the creation of the podcast has been a labor of love, Daniel believes that the podcast makes a meaningful impact for everyone involved.
“It’s really cool to be able to have a one-on-one conversation with a researcher and ask the questions we’ve received from families, as well as those I’m personally curious about,” says Daniel. “I also enjoy asking about how their work is ultimately helping families. It’s easy for researchers to be so focused on their work that they lose sight of the people for whom their work could make a difference. I love helping them recognize the value of their research and helping them communicate about how their work fits into the bigger picture of improving the lives of people impacted by TSC.”
The podcast isn’t the only platform Daniel has created to help the TSC Alliance share stories and communicate important information; he’s also launched monthly newsletters for families and researchers/clinicians, been instrumental in creating webinars and a video series, and, of course, helped TSC Alliance expand and enhance their social media presence, which now includes Facebook, YouTube, Twitter, Instagram, LinkedIn and Inspire.