Living with a rare disease can present unique challenges and can sometimes mean that you have to adapt your lifestyle to your condition. The frustration of not being able to achieve educational and occupational goals because of access issues shouldn’t have to be another hurdle. The value that researching, sharing and giving a voice to rare diseases is huge and there are no better advocates than those living with a rare disease themselves.
That’s why we partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. The goal of the award is to enrich the lives of people living with rare diseases by providing support for their educational pursuits.
In this blog, three recipients of the 2021 scholarship, Sandy Foukarakis, Sara Moore and Gino Vitelli, share their rare disease journey and what the scholarship means to them. You can read and watch below!