2025 #RAREis Global Advocate Grant

To qualify, organizations must meet the following criteria:

• Focus on serving the rare disease community beyond Amgen’s therapeutic areas.
• Commit to using the grant funds within the timeframe specified in your application.
• Not use grant funds to benefit healthcare providers.
• Submit a signed and dated IRS W-9 form (for U.S. applicants) or W-8 form (for international applicants), dated within the past 12 months.
• Provide proof of non-profit status:
  • U.S.-based organizations must submit a screenshot from ProPublica confirming 501(c)(3) status.
  • International organizations must provide official documentation or a website screenshot verifying their nonprofit or charitable designation.

The #RAREis Global Advocate Grant application involves two steps:

1. Download and Complete the #RAREis Form
   • Download the #RAREis form here. Be sure to save your progress as you go. Please provide clear, thorough and accurate responses. This information is required in the Amgen donation portal and will be used during the selection process.
     • If English is not your first language, we recommend using a browser with translation capability – like Google Chrome – to assist with navigation
2.  Submit Through Amgen’s Donation Portal
   • After completing the #RAREis form, please save it on your computer. Ensure the file is clearly labeled with your organization’s name.
   • Then, visit Amgen’s donation portal and create an account (or log in if you already have one).
   • Once logged in, upload the completed #RAREis form, answer the required questions within the portal and provide the required documentation, including:
     • A signed IRS W-9 or W-8 form
     • Proof of nonprofit status
   • When prompted, enter a donation amount of $5,000

3. Confirm Submission
   • After submitting through Amgen’s portal, you will receive an automated confirmation email. Please keep it for your records.

• Amgen cannot issue payments to third-party vendors or intermediaries. Funds must be paid directly to a verified organization via check or direct deposit.
• A verification process will confirm your organization’s banking and payee information. Inability to verify may result in forfeiture of the #RAREis Global Advocate Grant.
• Incomplete applications or unanswered questions may disqualify your submission.
• Past recipients are eligible to reapply for repeat funding.

If you have any questions or need support, contact us at rareconnect@amgen.com. We look forward to learning more about your organization’s efforts to make a difference in the rare disease community.