Category Archives: Working Within Rare

Meeting Myself in The Middle: My MG Story

February 25, 2025 by Laura Chandler

Serendipitous Dive into Advocacy

August 10, 2023 by Jake Weber

Making a Meaningful Difference

July 20, 2023 by Kate Gwnin

Working Hard to Create a Change

November 04, 2022 by Julie Grutzmacher

Working in Rare: A Mission Driven from Experience

June 17, 2022 by Nikki McIntosh

Support from The Akari Foundation

May 13, 2022 by Luisa Leal

2022: The Year of Mental Health

March 18, 2022 by Tom D'Amato

Using Education to Change Lives in Patient Advocacy

January 14, 2022 by Maile Kawamura

Harnessing the Power of Storytelling

November 05, 2021 by #RAREisTeam

Building a Stronger Community Through Patient Advocacy

October 15, 2021 by #RAREisTeam

The Power of Patient Advocacy is the Power to Make a Difference

September 24, 2021 by #RAREisTeam

A Passion for Advocacy and Making A Difference

August 20, 2021 by #RAREisTeam

2021: The Year of the Rare Carrier

January 29, 2021 by #RAREisTeam

A Personal Commitment to the Rare Disease Community: Launching TED Awareness Week

December 04, 2020 by #RAREisTeam

What is a patient access manager?

December 05, 2019 by #RAREisTeam

It Started with a Hashtag and a Mission

August 01, 2019 by Robert Metz

5 Tips For RARE Non-Profit Entrepreneurs and Leaders

July 26, 2019 by B.J. Viau