Category Archives: #RAREis Voices

We Get You, We See You

by Chris Velona

Holding onto Hope

by Deanna Fournier

A Dose of Hope

by Jon and Shirley Dicks
Saida Mahoney, a rare disease advocate, wearing a white dress and smiling for a photo on a red carpet with a gray curtain in the background for the California Miss Amazing pageant.
Tom from Sing Me A Story sits next to Francis and helps him write a story for a song
Taylor Kane stands and holds a sign that says "#ALDHero"

More than a Major

by #RAREisTeam
D.L. Frugé, wife Katie and daughters impacted by rare conditions smile in a family portrait
Mom, Kerri Fitzsimmons hugs son, Crosby, who lives with Morquio A Syndrome

“I Am Not Alone”

by Heather Norris

Life at Your Own Pace

by Jillian Goodwin

Growing Up Rare

by Skyler DiPalma

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